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EDITORIAL COMMENTARY |
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Transition from curative to palliative care in cancer |
p. 1 |
Jaspreet Kaur, Bidhu K Mohanti PMID:21633614 |
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ORIGINAL ARTICLES |
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Evaluation of knowledge among Interns in a medical college regarding palliative care in people living with HIV/AIDS and the impact of a structured intervention |
p. 6 |
Sameer Valsangkar, Trupti N Bodhare, Shripad B Pande, Samir D Bele, B Sitarama Rao DOI:10.4103/0973-1075.78443 PMID:21633615Background: The evolving nature of palliative care and its renewed role in people living with HIV/AIDS (PLWHA) in the post-HAART (highly active anti-retroviral therapy) era warrants an evaluation of the present curriculum in medical under graduates.
Objectives: The objectives are (1) to measure the existing knowledge regarding palliative care and its application to PLWHA among medical interns and (2) to measure the impact of a structured intervention on knowledge dimensions.
Design and Setting: Interventional repeated measures study.
Materials and Methods: A convenience sample of 106 interns in the medical college completed a pre-test assessment and a post-test assessment following a structured intervention for evaluation and comparison of knowledge over three dimensions which were (1) knowledge of palliative care and its application in PLWHA, (2) medical symptoms in PLWHA requiring palliative care and (3) psychosocial needs in PLWHA requiring palliative care.
Results: The mean scores on knowledge showed a consistent increase after the structured intervention and Student's t-test was significant across three dimensions of knowledge of palliative care and its application (t=9.12, P value <0.001), medical symptoms in PLWHA requiring palliative care (t=12.72, P value <0.001) and psychosocial needs in PLWHA (t=11.14, P value <0.001).
Conclusion: In spite of the unique challenges presented by the varying course of illness in PLWHA and the variety of needs on the medical, psychosocial and family dimensions, a structured approach and an integrated course curriculum involving principles of both primary and palliative care principles will improve the efficiency of the undergraduate medical education program and enable delivery of effective palliative care interventions and improve quality of life in PLWHA. |
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Evaluating the role of support group structures as vehicles of palliative care: Giving productivity in the kanye care program in Botswana |
p. 11 |
Simon Kang'ethe DOI:10.4103/0973-1075.78444 PMID:21633616Aims: The article aims to explore, evaluate, and discuss the role associated with the presence or absence of caregivers' support groups in the Kanye care program in Botswana.
Objective : The objective of the study was to solicit the views, attitudes, and thinking of palliative caregivers on the role, and implication of the presence and absence of support groups as vehicles influencing care-giving productivity.
Materials and Methods : The study was explorative and descriptive in nature and used a qualitative design, involving 82 primary caregivers in focus group discussions and five community home-based care nurses in one- to-one interviews.
Results: The support groups were found to play the following pivotal roles: (1) facilitate forums of strengthening caregivers; (2) facilitate sharing and exchange of information among caregivers; (3) facilitate counselling, debriefings, and education among caregivers; (4) foster the spirit and feelings of togetherness among caregivers; and (5) act as advocacy fronts and an opportunity of pooling and mobilizing the resources.
Conclusion: The article recommends to the Government and the nongovernmental organizations to assist all care programs to institute and facilitate the formation of caregivers' support groups. |
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Awareness of palliative care among diploma nursing students |
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Suja Karkada, Baby S Nayak, Malathi DOI:10.4103/0973-1075.78445 PMID:21633617Background: The goal of palliative care is not to cure, but to provide comfort and maintain the highest possible quality of life for as long as life remains. The knowledge of nurses influences the quality of care provided to these patients. The present study aimed at identifying the level of knowledge and attitude of nursing students who are the future caretakers of patients, which helps to make recommendations in incorporating palliative care concepts in the nursing curriculum.
Objectives: (1) To assess the level of knowledge of nursing students on palliative care; (2) To identify the attitude of nursing students towards palliative care; (3) To find the correlation between the knowledge and attitude of nursing students; (4) To find the association between nursing students' knowledge, attitude and selected demographic variables.
Materials and Methods: A correlative survey was carried out among 83 third-year Diploma Nursing students by using cluster sampling method from selected nursing schools of Udupi district.
Results: The data analyzed showed that the majority (51%) of them was in the age group of 21years and 92% of them were females. Only 43.4% of them were aware of the term palliative care and it was during their training period. The data showed that 79.5% of students had poor knowledge (6.4± 1.64) on palliative care and 92.8% of them had favorable attitude (56.7± 8.5) towards palliative care. The chi-square showed a significant association between knowledge and age (χ2 =18.52,P<0.01) of the nursing students.
Conclusion: Palliative care aspects should be incorporated in the diploma nursing curriculum. |
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Impact of pain and palliative care services on patients |
p. 24 |
S Santha DOI:10.4103/0973-1075.78446 PMID:21633618Background: Palliative care has become an emerging need of the day as the existing health-care facilities play only a limited role in the care of the chronically ill in the society. Patients with terminal illness in most cases spend their lives in the community among their family and neighbors, so there is the need for a multi disciplinary team for their constant care. Volunteers are primary care givers who originate normally from the same locality with local knowledge and good public contact through which they can make significant contributions in a team work by bridging the gap between the patient community and outside world.
Aim: The present study has been undertaken to analyze the impact of palliative care services on patients by considering 51 variables.
Materials and Methods: The respondents of the study include 50 pain and palliative care patients selected at random from 15 palliative care units functioning in Ernakulam district. The analysis was made by using statistical techniques viz. weighted average method, Chi-square test, Friedman repeated measures analysis of variance on ranks and percentages.
Results: The study revealed that the major benefit of palliative care to the patients is the reduction of pain to a considerable extent, which was unbearable for them earlier. Second, the hope of patients could be maintained or strengthened through palliative care treatment.
Conclusion: It is understood that the services of the doctors and nurses are to be improved further by making available their services to all the palliative care patients in a uniform manner. |
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The attitudes of Indian palliative-care nurses and physicians to pain control and palliative sedation |
p. 33 |
Joris Gielen, Harmala Gupta, Ambika Rajvanshi, Sushma Bhatnagar, Seema Mishra, Arvind K Chaturvedi, Stef Van den Branden, Bert Broeckaert DOI:10.4103/0973-1075.78447 PMID:21633619Aim: We wanted to assess Indian palliative-care nurses and physicians' attitudes toward pain control and palliative sedation.
Materials and Methods: From May to September 2008, we interviewed 14 physicians and 13 nurses working in different palliative-care programs in New Delhi, using a semi-structured questionnaire, and following grounded-theory methodology (Glaser and Strauss).
Results: The interviewees did not consider administration of painkillers in large doses an ethical problem, provided the pain killers are properly titrated. Mild palliative sedation was considered acceptable. The interviewees disagreed whether palliative sedation can also be deep and continuous. Arguments mentioned against deep continuous palliative sedation were the conviction that it may cause unacceptable side effects, and impedes basic daily activities and social contacts. A few interviewees said that palliative sedation may hasten death.
Conclusion: Due to fears and doubts regarding deep continuous palliative sedation, it may sometimes be too easily discarded as a treatment option for refractory symptoms. |
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Clinical audit on documentation of anticipatory "Not for Resuscitation" orders in a tertiary australian teaching hospital |
p. 42 |
Naveen Sulakshan Salins, Wendy Jansen DOI:10.4103/0973-1075.78448 PMID:21633620Aim: The purpose of this clinical audit was to determine how accurately documentation of anticipatory Not for Resuscitation (NFR) orders takes place in a major metropolitan teaching hospital of Australia.
Materials and Methods: Retrospective hospital-based study. Independent case reviewers using a questionnaire designed to study NFR documentation reviewed documentation of NFR in 88 case records.
Results: Prognosis was documented in only 40% of cases and palliative care was offered to two-third of patients with documented NFR. There was no documentation of the cardiopulmonary resuscitation (CPR) process or outcomes of CPR in most of the cases. Only in less than 50% of cases studied there was documented evidence to suggest that the reason for NFR documentation was consistent with patient's choices.
Conclusion: Good discussion, unambiguous documentation and clinical supervision of NFR order ensure dignified and quality care to the dying. |
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Effects of palliative care training program on knowledge, attitudes, beliefs and experiences among student physiotherapists: A preliminary quasi-experimental study |
p. 47 |
Senthil P Kumar, Anand Jim, Vaishali Sisodia DOI:10.4103/0973-1075.78449 PMID:21633621Background: Physiotherapists play an inherent role in the multidisciplinary palliative care team. Existing knowledge, attitudes, beliefs and experiences influence their team participation in palliative care.
Aims: The objective of this study was to assess the changes in knowledge, attitudes, beliefs and experiences among student physiotherapists who attended a palliative care training program.
Settings and Design: Preliminary quasi-experimental study design, conducted at an academic institution.
Materials and Methods: Fifty-two student physiotherapists of either gender (12 male, 40 female) of age (20.51±1.78 years) who attended a palliative care training program which comprised lectures and case examples of six-hours duration participated in this study. The study was performed after getting institutional approval and obtaining participants' written informed consent. The lecture content comprised WHO definition of palliative care, spiritual aspects of life, death and healing, principles, levels and models of palliative care, and role of physiotherapists in a palliative care team. The physical therapy in palliative care-knowledge, attitudes, beliefs and experiences scale (PTiPC-KABE Scale)- modified from palliative care attitudes scale were used for assessing the participants before and after the program.
Statistical Analysis: Paired t-test and Wilcoxon signed rank test at 95% confidence interval using SPSS 11.5 for Windows.
Results: Statistically significant differences (P<0.05) were noted for all four subscales- knowledge (7.84±4.61 points), attitudes (9.46±8.06 points), beliefs (4.88±3.29 points) and experiences (15.8±11.28 points) out of a total score of 104 points.
Conclusions: The focus-group training program produced a significant positive change about palliative care in knowledge, attitudes, beliefs and experiences among student physiotherapists. |
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Anticoagulant and anti-thrombotic treatments in the management of hematological malignancies in a home care program |
p. 54 |
Andrea Tendas, Luca Cupelli, Laura Scaramucci, Massimiliano Palombi, Malgorzata Monika Trawinska, Marco Giovannini, Gregorio Antonio Brunetti, Claudio Cartoni, Francesco Bondanini, Paolo de Fabritiis, Pasquale Niscola DOI:10.4103/0973-1075.78450 PMID:21633622Aim: Anticoagulants (AC) and anti-platelet (AP) agents are widely administered to patients with hematological malignancies (HM). However, HM patients may be at high risk of bleeding and hemorrhagic complications, because of different form of coagulopathies and several degrees of thrombocytopenia.
Materials and Methods: A prospective evaluation of the use of anticoagulant and anti-thrombotic agents as well as of bleeding and thrombotic complications in a consecutive cohort of patients, which were followed during the first semester of 2010 by our home care service, was performed. In this regard, three pharmacological class of agents, such as oral anticoagulants (warfarin and acenocumarine), low molecular weight heparin (LMWH) and anti-platelet (AP) drugs were considered.
Results: Out of 129 patients, 26 (20%) were treated with AC/AP drugs. Warfarin, acenocumarine, LMWH as well as AP were used in 7, 11 and 12 patients, respectively. Adverse events (bleeding) were observed in 3 patients (11.5%), 2 cases being on warfarin (replaced by LMWH) and 1 being AP (suspension without replacement); out of the 3 patients with bleeding, none presented thrombocytopenia.
Conclusions: Despite the frequent findings of hemostatic disorders in a population of frail patients managed in a home care setting, our experience demonstrated that the use of AC/AP drugs has been very rarely responsible for significant complications. |
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Reporting characteristics of cancer pain: A systematic review and quantitative analysis of research publications in palliative care journals |
p. 57 |
Senthil P Kumar DOI:10.4103/0973-1075.78451 PMID:21633623Objective: A common disorder requiring symptom palliation in palliative and end-of-life care is cancer. Cancer pain is recognized as a global health burden. This paper sought to systematically examine the extent to which there is an adequate scientific research base on cancer pain and its reporting characteristics in the palliative care journal literature.
Materials and Methods: Search conducted in MEDLINE and CINAHL sought to locate all studies published in 19 palliative/ hospice/ supportive/ end-of-life care journals from 2009 to 2010. The journals included were: American Journal of Hospice and Palliative Care, BMC Palliative Care, Current Opinion in Supportive and Palliative Care, End of Life Care Journal, European Journal of Palliative Care, Hospice Management Advisor, Indian Journal of Palliative Care, International Journal of Palliative Nursing, Internet Journal of Pain Symptom Control and Palliative Care, Journal of Pain and Palliative Care Pharmacotherapy, Journal of Palliative Care, Journal of Palliative Medicine, Journal of Social Work in End-of-life and Palliative Care, Journal of Supportive Oncology, Palliative Medicine, Palliative and Supportive Care, and Supportive Care in Cancer. Journal contents were searched to identify studies that included cancer pain in abstract.
Results: During the years 2009 and 2010, of the selected 1,569 articles published in the journals reviewed, only 5.86% (92 articles) were on cancer pain.
Conclusion: While researchers in the field of palliative care have studied cancer pain, the total percentage for studies is still a low 5.86%. To move the field of palliative care forward so that appropriate guidelines for cancer pain management can be developed, it is critical that more research be reported upon which to base cancer pain therapy in an evidence-based palliative care model. |
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CASE REPORTS |
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Emergency total thyroidectomy for bleeding anaplastic thyroid carcinoma: A viable option for palliation |
p. 67 |
Sunil Kumar, Mohit Kumar Joshi DOI:10.4103/0973-1075.78452 PMID:21633624Anaplastic thyroid carcinoma (ATC) is a rare and highly aggressive thyroid neoplasm. Bleeding from tumor is an uncommon, but potentially life-threatening complication requiring sophisticated intervention facilities which are not usually available at odd hours in emergency. We report the case of a 45-year-old woman who presented with exsanguinating hemorrhage from ATC and was treated by emergency total thyroidectomy. The patient is well three months postoperatively. Emergency total thyroidectomy is a viable option for palliation in ATC presenting with bleeding. |
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Rehabilitation of patient with acquired maxillary defect, using a closed hollow bulb obturator |
p. 70 |
Abhilasha S Bhasin, Virendra Singh, Sneha S Mantri DOI:10.4103/0973-1075.78453 PMID:21633625Palliative care means providing support and care for patients with life-threatening or debilitating illness so that they can live their life as comfortably as possible. The fact that cure is no longer a reality does not mean that care cannot be made available. Partial maxillectomy defect presents a prosthodontic challenge in terms of re-establishing oronasal separation. Such defect has direct effect on cosmetic, function and psychology of the patient. This article describes step by step clinical and laboratory procedures involved in the rehabilitation of a hemimaxillectomy patient, using a definitive closed hollow bulb obturator, which improved his physical, emotional, functional, social and spiritual needs. |
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Role of surgery in breast metastasis from carcinoma of the cervix |
p. 74 |
Parveen Yadav, NML Manjunath, SVS Deo, NK Shukla, Prashant Durgapal, Dillip K Muduly DOI:10.4103/0973-1075.78454 PMID:21633626Carcinoma of the cervix is the most common malignancy among women in India. Although metastatic disease is common, metastasis to breast is rare. A limited number of case reports are published in the world literature. Most of the previous reports of metastatic cervical carcinoma to breast are either autopsy series or widely disseminated disease where no treatment options were available. A rare case of cervical carcinoma presenting as metastasis in breast is reported here where palliative mastectomy improved the general condition of the patient. A female patient aged 58 years was diagnosed and treated for cervical carcinoma, FIGO stage 2B. Four months after the treatment which included both external beam and intracavitory radiotherapy, the patient presented with breast and lung metastasis. Palliative mastectomy was done which improved the general condition of the patient. Metastatic carcinoma of the cervix can present as a case of breast carcinoma. In an appropriate setting, this possibility should be kept in mind. Palliative mastectomy should be offered for patients of cervical carcinoma with metastasis to breast when needed. |
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LETTERS TO EDITOR |
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Palliative care in children: The role of a pediatric dentist in the Indian scenario |
p. 77 |
K Kiran, BK Kamala DOI:10.4103/0973-1075.78455 PMID:21633627 |
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Addendum to the previous article: A position statement by Indian association of palliative care |
p. 78 |
Stanley C Macaden DOI:10.4103/0973-1075.78456 |
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Battling chemotherapy-induced nausea and vomiting in cancer palliative care |
p. 78 |
Dilip Gude DOI:10.4103/0973-1075.78457 PMID:21633628 |
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PRACTITIONER SECTION |
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Mechanism-based classification of pain for physical therapy management in palliative care: A clinical commentary |
p. 80 |
Senthil P Kumar, Sourov Saha DOI:10.4103/0973-1075.78458 PMID:21633629Pain relief is a major goal for palliative care in India so much that most palliative care interventions necessarily begin first with pain relief. Physical therapists play an important role in palliative care and they are regarded as highly proficient members of a multidisciplinary healthcare team towards management of chronic pain. Pain necessarily involves three different levels of classification-based upon pain symptoms, pain mechanisms and pain syndromes. Mechanism-based treatments are most likely to succeed compared to symptomatic treatments or diagnosis-based treatments. The objective of this clinical commentary is to update the physical therapists working in palliative care, on the mechanism-based classification of pain and its interpretation, with available therapeutic evidence for providing optimal patient care using physical therapy. The paper describes the evolution of mechanism-based classification of pain, the five mechanisms (central sensitization, peripheral neuropathic, nociceptive, sympathetically maintained pain and cognitive-affective) are explained with recent evidence for physical therapy treatments for each of the mechanisms. |
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