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| ORIGINAL ARTICLE
|Year : 2014 | Volume
| Issue : 3 | Page : 201--207
Creation of minimum standard tool for palliative care in India and self-evaluation of palliative care programs using it
MR Rajagopal1, Anjum Khan Joad2, Maryann Muckaden3, Reena George4, Harmala Gupta5, Mhoira EF Leng6, Gayatri Palat7, Firuza Patel8, Biju Raghavan9, Suresh K Reddy10, MM Sunilkumar11, Mallika Tiruvadanan12, Stephen R Connor13
1 Director, WHO Collaborating Centre for Policy and Training on Access to Pain Relief, Pallium India, Trivandrum, Kerala, India
2 Department of Palliative Care Medicine, Bhagwan Mahaveer Cancer Hospital and Research Centre, Jaipur, Rajasthan, India
3 Professor and Head of Palliative Medicine, Tata Memorial Cancer Hospital, Mumbai, Maharashtra, India
4 Department of Palliative Care, Christian Medical College, Vellore, Tamil Nadu, India
5 Founder-President, Can Support, New Delhi, India
6 Head of Palliative Care, Makerere University, Kampala, Uganda, Medical Director Cairdeas International Palliative Care Trust, Scotland
7 Department of Pain and Palliative Medicine, MNJ Institute of Oncology and Regional Cancer Centre, Hyderabad, Andhra Pradesh, India
8 Department of Radiotherapy and Oncology, Post Graduate Institute of Medical Education and Research, Chandigarh, India
9 Department of Palliative Care, Kerala Institute of Medical Sciences (KIMS), Trivandrum, Kerala, India
10 Department of Palliative Care, University Of Texas MD Anderson Cancer Center, Houston, Texas, USA
11 Department of Training, Alpha Palliative Care, Edamuttam, Thrissur, Kerala, India
12 Managing Trustee, Lakshmi Pain and Palliative Care Trust, Adjunct Professor, The Tamil Nadu Dr. MGR Medical University, Chennai, Tamil Nadu, India
13 Worldwide Palliative Care Alliance, Washington, USA
Background: It is important to ensure that minimum standards for palliative care based on available resources are clearly defined and achieved.
Aims: (1) Creation of minimum National Standards for Palliative Care for India. (2) Development of a tool for self-evaluation of palliative care organizations. (3) Evaluation of the tool in India. In 2006, Pallium India assembled a working group at the national level to develop minimum standards. The standards were to be evaluated by palliative care services in the country.
Materials and Methods: The working group prepared a "standards" document, which had two parts - the first composed of eight "essential" components and the second, 22 "desirable" components. The working group sent the document to 86 hospice and palliative care providers nationwide, requesting them to self-evaluate their palliative care services based on the standards document, on a modified Likert scale.
Results: Forty-nine (57%) palliative care organizations responded, and their self-evaluation of services based on the standards tool was analyzed. The majority of the palliative care providers met most of the standards identified as essential by the working group. A variable percentage of organizations had satisfied the desirable components of the standards.
Conclusions: We demonstrated that the "standards tool" could be applied effectively in practice for self-evaluation of quality of palliative care services.
M R Rajagopal
Director, WHO Collaborating Centre for Policy and Training on Access to Pain Relief, Pallium India, Trivandrum, Kerala, India
Source of Support: National Hospice and Palliative Care Organization, Conflict of Interest: None
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