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Table of Contents 
ORIGINAL ARTICLE
Year : 2012  |  Volume : 18  |  Issue : 1  |  Page : 59-67

Reporting of "Quality of life": A systematic review and quantitative analysis of research publications in palliative care journals


Department of Physiotherapy, Kasturba Medical College, Manipal University, Mangalore, Karnataka, India

Date of Web Publication18-Jun-2012

Correspondence Address:
Senthil P Kumar
Department of Physiotherapy, Kasturba Medical College, Manipal University, Mangalore, Karnataka
India
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/0973-1075.97475

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 » Abstract 

Context: Palliative care clinical practice depends upon an evidence-based decision-making process which in turn is based upon current research evidence. One of the most important goals in clinical palliative care is to improve patients' quality of life (QoL).
Aim: This study aimed to perform a quantitative analysis of research publications in palliative care journals for reporting characteristics of articles on QoL.
Settings and Design: This was a systematic review of palliative care journals.
Materials and Methods: Twelve palliative care journals were searched for articles with "QoL" in the title of the articles published from 2006 to 2010. The reporting rates of all journals were compared. The selected articles were categorized into assessment and treatment, and subsequently grouped into original and review articles. The original articles were subgrouped into qualitative and quantitative studies, and the review articles were grouped into narrative and systematic reviews. Each subgroup of original article category was further classified according to study designs.
Statistical Analysis Used: Descriptive analysis using frequencies and percentiles was done using SPSS for Windows, version 11.5.
Results: The overall reporting rate among all journals was 1.95% (71/3634), and Indian Journal of Palliative Care (IJPC) had the highest reporting rate of 5.08% (3/59), followed by Palliative Medicine (PM) with 3.71% (20/538), and Palliative and Supportive Care (PSC) with 3.64% (9/247) reporting.
Conclusions: The overall reporting rate for QoL articles in palliative care journals was 1.95% and there were very few randomized clinical trials and systematic reviews found. The study findings indicate further high-quality research to establish an adequate evidence base for QoL.


Keywords: Evidence-based palliative care, Journal reporting, Publication trend, Quality of life, Research


How to cite this article:
Kumar SP. Reporting of "Quality of life": A systematic review and quantitative analysis of research publications in palliative care journals. Indian J Palliat Care 2012;18:59-67

How to cite this URL:
Kumar SP. Reporting of "Quality of life": A systematic review and quantitative analysis of research publications in palliative care journals. Indian J Palliat Care [serial online] 2012 [cited 2019 Oct 18];18:59-67. Available from: http://www.jpalliativecare.com/text.asp?2012/18/1/59/97475



 » Introduction Top


The most important focus of palliative care in the treatment of patients with life-limiting conditions is to improve their symptom control, [1] level of functioning, [2],[3] and quality of life (QoL). [4],[5],[6] The World Health Organization (WHO) defines QoL as "individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns." [7] According to WHO, health-related QoL (HRQoL) is a broad-ranging concept affected in a complex way by a person's physical health, psychological state, level of independence, social relationships, personal beliefs, and their relationship with salient features of their environment. [7]

HRQoL has been widely studied on the general population and on patients with a variety of disease conditions and varying age groups. [8] Two types of measurement instruments for assessing the QoL were developed: generic and disease or population specific. [9] Examples of generic HRQoL instruments were Medical Outcomes Short-Form Health Survey (SF-36), [10] WHOQoL-100, [11] WHOQoL-BREF, [12] Kidney Disease QoL-Short Form (KDQoL-SF) questionnaire, [13] McGill QoL questionnaire, [14] and EuroQoL/EQ-5D. [15] Disease-specific HRQoL measures were Asthma QoL questionnaire (AQLQ), [16],[17] Diabetes-Specific QoL (DiabQoL), [18] European Organization for Research and Treatment on Cancer-Quality of Life questionnaire (EORTC-QLQ), [19] Neuropathy-Specific QoL instrument (NeuroQoL), [20] Stroke-Specific QoL, [21] Alzheimer's Disease-Related QoL (ADRQL) questionnaire. [22] Population-specific HRQoL measures were OPQoL [23] and PedsQoL. [24] One instrument specifically developed for its use in palliative care settings is the palliative care QoL instrument (PQLI). [25] The assessment of HRQoL was done through a range of assessment methods by the person (self-reported), the caregiver (proxy reported), or the healthcare professional (clinician rated). [26]

Despite the growing emphasis on QoL in clinical palliative care practice, [27] the current evidence era and the ensuing evidence-based practice warranted application of current research evidence into clinical decision making to facilitate evidence-based palliative care (EBPC). [28] Such an analysis of research evidence could not be based upon anecdotal findings [29] and thus there is a need to evaluate the reporting of research on QoL in palliative care journals. Previously published studies on analysis of palliative care journals were on reporting of moral problems (ethical issues), [30] euthanasia, [31] chaplains and community-based clergy, [32],[33] religion and spirituality, [33],[34],[35] cancer pain, [36] and pediatric palliative care. [37] The objective of this paper was to perform a quantitative analysis of research articles on QoL, published in palliative care journals over the past 5 years.


 » Materials and Methods Top


Search strategy and criteria

Journals indexed in MEDLINE with name "palliative" were included and searched from 2006 till 2010 for English papers with "quality of life" in the title of the paper.

Data synthesis

The total number of articles in all the selected journals was taken as N. The number of included articles (N1 ) based on search criteria were compared with the number of articles that had "quality of life" in the title (NR ) to obtain reporting rates (N1 /N%) for each journal. Such an estimate provided reporting rate (RR) for QoL. The journals were categorized broadly into multidisciplinary, medical, nursing, and other (social work) categories of palliative care journals. The included studies were then categorized into original articles and review articles. The original articles were then again grouped into qualitative and quantitative studies. The review articles were grouped into narrative and systematic reviews. The qualitative and quantitative studies were then subgrouped based upon study designs. Further, the articles on QoL were grouped into two broad categories: assessment studies and treatment studies. The number of articles reported in each of the final subgroups was computed. The procedure of data synthesis is explained in the schematic flowchart [Figure 1].
Figure 1: Schematic flowchart for data synthesis used in this study

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Data analysis

Descriptive analysis using frequencies for the number of studies with respective percentiles was used for reporting characteristics and was done using the 95% confidence interval by SPSS for Windows, version 11.5 (SPSS Inc., IL, USA). The comparison between journals and article categories was done visually.


 » Results Top


Overall journals' characteristics

The study included 12 palliative care journals with a total number of 3634 articles and 71 included articles which had "quality of life" in the title. The overall reporting rate for articles on QoL is 1.95% [Figure 2]. AJHPC, Am J Hosp Palliat Care; BMCPC, BMC Palliat Care; COSPC, Curr Opin Support Palliat Care; IJPC, Indian J Palliat Care; IJPN, Int J Palliat Nurs; JHPN, J Hosp Palliat Nurs; JPPCP, J Pain Palliat Care Pharmacother; JPC, J Palliat Care; JPM, J Palliat Med; JSWELPC, J Soc Work End Life Palliat Care; PM, Palliat Med; and, PSC, Palliat Support Care.
Figure 2: Overall prevalence of reporting "quality of life" (QoL) in all the palliative care journals

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Individually AJHPC had 8 articles, [38],[39],[40],[41],[42],[43],[44],[45] BMCPC had 1 article, [46] COSPC had 1 article, [47] IJPC had 3 articles, [48],[49],[50] IJPN had 5 articles, [51],[52],[53],[54],[55] JHPN had 0 article, JPPCP had 0 article, JPC had 5 articles, [56],[57],[58],[59],[60] JPM had 18 articles, [61],[62],[63],[64],[65],[66],[67],[68],[69],[70],[71],[72],[73],[74],[75],[76],[77],[78] JSWELPC had 1 article, [79] PM had 20 articles, [80],[81],[82],[83],[84],[85],[86],[87],[88],[89],[90],[91],[92],[93],[94],[95],[96],[97],[98],[99] and PSC had 9 articles [3],[100],[101],[102],[103],[104],[105],[106],[107] on QoL. Also refer to [Table 1] for respective reporting rates and [Figure 3] for the comparison of number of "QoL" articles and "other" articles between the journals. Indian Journal of Palliative Care (IJPC) had the highest reporting rate of 5.08% (3/59), followed by Palliative Medicine (PM) with 3.71% (20/538), and Palliative and Supportive Care (PSC) with 3.64% (9/247) reporting rate.
Figure 3: Comparison of reporting rates of "quality of life" (QoL) articles between palliative care journals
AJHPC, Am J Hosp Palliat Care; BMCPC, BMC Palliat Care; COSPC, Curr Opin Support Palliat Care; IJPC, Indian J Palliat Care; IJPN, Int J Palliat Nurs; JHPN, J Hosp Palliat Nurs; JPPCP, J Pain Palliat Care Pharmacother; JPC, J Palliat Care; JPM, J Palliat Med; JSWELPC, J Soc Work End Life Palliat Care; PM, Palliat Med; and PSC, Palliat Support Care


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Table 1: Comparison of reporting rates of palliative care Journals on Pediatric Palliative Care

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Of the selected journals, seven were multidisciplinary (AJHPC, BMCPC, COSPC, IJPC, JPC, JPPCP, PSC), two were medical (JPM, PM), two were nursing (IJPN, JHPN), and one was other (social work - JSWEOLPC). The comparison between the four categories of palliative care journals is shown in [Figure 4]. Medical palliative care journals had the highest reporting rate of 2.34% followed by multidisciplinary palliative care journals at 2.16% and social work-related palliative care journals at 1.51% and nursing palliative care journals at 1.14%.
Figure 4: Comparison of reporting rates between multidisciplinary, medical, nursing, and other palliative care journals

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QoL studies on assessment or treatment

Of the 71 included articles, 56 were on assessment [3],[38],[40],[41],[42],[43],[44],[47],[49],[50],[52],[53],[54],[55],[56],[57],[58],[59],[60],[61],[62],[64],[65],[68],[69],[70],[71],[72],[74],[76],[78],[79],[80],[82],[83],[84],[85],[86],[88][,89],[90],[91],[92],[94],[95],[96],[98],[99],[100],[101],[102],[103],[104],[105],[106],[107] and 15 were on treatment. [39],[45],[46],[48],[51],[63],[66],[67],[73],[75],[77],[81],[87],[93],[97]

Among the 56 assessment articles, 43 were original articles [3],[42],[49],[50],[52],[54],[55],[56],[57],[58],[59],[60],[61],[62],[64],[65],[68],[69],[70],[71],[72],[74],[76],[78],[79],[80],[82],[83],[84],[85],[86],[88],[91],[92],[95],[96],[98],[99],[100],[101],[102],[103],[104],[105] and 13 were review articles. [3],[38],[40],[41],[43],[44],[47],[53],[89],[90],[94],[106],[107] Among the 43 original articles on assessment, 8 were qualitative studies [54],[58],[68],[76],[82],[85],[86],[98] (all of them were cross-sectional studies) and 35 were quantitative studies [3],[42],[49],[50],[52],[55],[56],[57],[59],[60],[61],[62],[64],[65],[69],[70],[71],[72],[74],[78],[79],[80],[83],[84],[88],[91],[92],[95],[96],[99],[100],[101],[102],[103],[104],[105] of which 4 were cohort studies, [61],[72],[74],[83] 1 article was a case-control study, [65] and 30 articles were cross-sectional studies. [3],[42],[49],[50],[52],[55],[56],[57],[59],[60],[62],[64],[69],[70],[71],[78],[79],[80],[84],[88],[91],[92],[95],[96],[99],[100],[101],[102],[103],[104],[105] Of the 13 review articles on assessment, 11 were narrative reviews [38],[40],[41],[43],[44],[47],[53],[89],[94],[106],[107] and 2 were systematic reviews. [3],[99] See [Table 2] for a detailed description of assessment studies.
Table 2: Characteristics of assessment articles on "quality of life" in terms of their type of article, method of research, and study design

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Among the 15 treatment articles, 12 were original articles [45],[46],[63],[66],[67],[73],[75],[77],[81],[87],[93],[97] and 3 were review articles. [39],[48],[51] Of the 12 original articles on treatment, there were no qualitative studies and all were quantitative studies. [45],[46],[63],[66],[67],[73],[75],[77],[81],[87],[93],[97] Of the 12 quantitative studies, 4 were randomized clinical trials, [45],[67],[87],[97] 4 were nonrandomized clinical trials, [46],[73],[75],[93] 2 were cohort studies, [63],[66] 1 was a case-control study, [77] and 1 article was a case report. [81] All the three review articles were narrative reviews. See [Table 3] for a detailed description of treatment studies.

The relative prevalence of assessment and treatment studies is shown in [Figure 5], and their comparison for original and review articles on QoL is provided in [Figure 6]. The comparison between original articles on assessment versus treatment for their study designs is given in [Figure 7] and [Figure 8], respectively.
Figure 5: Comparison of prevalence of articles on QoL (quality of life) assessment versus treatment studies

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Figure 6: omparison of types of articles among the two "quality of life" (QoL) article categories (qualitative and quantitative studies)

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Figure 7: Comparison between qualitative and quantitative types of original articles on the assessment of quality of life (QoL) for reporting rates of different study designs. RCT, randomized clinical trial; NRCT, nonrandomized clinical trial; CS, cohort study; CCS, case-control study; CSS, cross-sectional study; CR, case report

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Figure 8: Distribution of different study designs among quantitative studies on treatment of "quality of life" (QoL)
RCT, randomized clinical trial; NRCT, nonrandomized clinical trial; CS, cohort study; CCS, case-control study; CSS, cross-sectional study; CR, case report


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Table 3: Characteristics of treatment articles on "quality of life" in terms of their type of article, method of research and study design

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 » Discussion Top


This study is essentially the first of its kind of a review of palliative care journals utilizing a systematic approach to quantitatively identify reporting characteristics of articles on QoL. Why this study found a much smaller reporting rate could only be due to the relatively lesser emphasis given on citing "quality of life" in the title of the articles. The reasons for the underrepresentation of QoL in studies published in palliative care journals could be attributed to reporting standards of citing the term QoL in the study title or abstract of the article, and a biomedical orientation to chronic pain and palliative care rather than a behavioral orientation in clinical palliative care practice. This study included journals as they are indexed in MEDLINE since it is the common database for evidence search, and the last 5 years of analysis provided information trend on recent reporting rates. Despite the WHO definition of palliative care emphasizing "quality of life" as a comprehensive part of providing care to patients with life-limiting disorders, [108] the underemphasis of QoL in studies published in palliative care journals is widely unacceptable and it warrants better reporting to establish adequate evidence for practice. This study being the first of its kind has thrown light on existing dearth in research evidence so that clinicians would be fostered for publishing further high-quality research emphasizing on quality of life.

One of the probable reasons for this underreporting could be attributed to the feasibility and pitfalls of using QoL measures in clinical settings, on the frail population, although very needed and essential. The use of QoL measures could be done in a variety of methods (patient vs. caregiver reported) which would also add to the heterogeneity of the observed findings. [109]

Many of the articles in palliative medicine aim to improve our patients, even if they do not include the word QoL in the title; there are many articles which may include QoL as part of the article (such as articles on symptom assessment scale, palliative outcomes, well being, etc.) which may not be necessarily the title, so this may actually under-represent the real numbers of articles out there that include and support the topic. This could be one of the important limitations of this study being its search strategy, since we assume that the maximum emphasis is given to the terms in the title, and title terms are widely searched and accessed for evidence retrieval.

The study found some interesting observations - some expected, some rather unexpected. As expected, a multidisciplinary emphasis on QoL was evident when multidisciplinary palliative care journals ranked he highest compared to medical and nursing palliative care journals. The two unexpected observations include lack of qualitative studies among articles on QoL treatment and very few randomized clinical trials (either qualitative or quantitative) and/or systematic reviews found. The insufficient number of systematic reviews and randomized clinical trials virtually undermines the current EBPC since they are ranked the highest in hierarchy among the levels of evidence.

Healthcare professionals need to be aware of the relatively lesser reporting of QoL articles in the palliative care journal literature and should shoulder the responsibility to foster a better number of reporting high-quality research on QoL for EBPC. Researching the incidence of reporting provides us with information on the amount of existing evidence and this information may be used by clinicians focusing on QoL in their palliative care practice. In future, such reviews could be performed with quality appraisal and identify the quality of reporting QoL articles. Also, reviews from other related journals like rehabilitation journals and medical journals may yield different results. The percentage of QoL being a thematic focus was not reported previously among general medical journals, and in this study, QoL was reported in only 2.34% of articles in general medical (palliative care) journals in contrast to the overall 1.95% among all palliative care journals. This seemingly positive shift in research focus toward QoL in palliative medicine is most welcome and is the emergent need of the hour. The comparison of reporting characteristics between journals based on their specialty would direct clinicians to find research appropriate to answer their relevant clinical questions during EBPC.


 » Conclusion Top


The overall 5-year prevalence in reporting of articles on QoL was 1.95% among the 12 palliative care journals reviewed in this study. It would be harsh on our part to conclude that this reporting rate is low, since we do not have published evidence on QoL reporting in other journals. There were very few randomized clinical trials and systematic reviews found. The study findings indicate lack of an adequate evidence base for QoL and further high-quality clinical trials are required to base clinical decisions for palliative care clinical practice.

 
 » References Top

1.Gwyther L, Rawlinson F. Symptom control in palliative care- essential for quality of life. S Afr Med J 2004;94:437.  Back to cited text no. 1
    
2.Helbostad JL, Hølen JC, Jordhøy MS, Ringdal GI, Oldervoll L, Kaasa S, et al. A first step in the development of an international self-report instrument for physical functioning in palliative cancer care: A systematic literature review and an expert opinion evaluation study. J Pain Symptom Manage 2009;37:196-205.  Back to cited text no. 2
    
3.Jordhoy MS, Inger Ringdal G, Helbostad JL, Oldervoll L, Loge JH, Kaasa S. Assessing physical functioning: A systematic review of quality of life measures developed for use in palliative care. Palliat Med 2007;21:673-82.  Back to cited text no. 3
    
4.Jocham HR, Dassen T, Widdershoven G, Halfens R. Quality of life in palliative care cancer patients: A literature review. J Clin Nurs 2006;15:1188-95.  Back to cited text no. 4
    
5.Pratheepawanit N, Salek MS, Finlay IG. The applicability of quality-of-life assessment in palliative care: Comparing two quality-of-life measures. Palliat Med 1999;13:325-34.  Back to cited text no. 5
    
6.Garner J. Palliative care: It′s the quality of life remaining that matters. Can Med Assoc J 1976;115:179-80.  Back to cited text no. 6
    
7.World health organization- programme on mental health. WHOQOL- measuring quality of life. World health organization, Geneva, 1997.  Back to cited text no. 7
    
8.U.S department of health and human services. Measuring healthy days- population assessment of health-related quality of life. Centers for disease control and prevention, Atlanta, Georgia, 2000.  Back to cited text no. 8
    
9.Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989;27:S217-32.  Back to cited text no. 9
    
10.Hopman WM, Berger C, Joseph L, Towheed T, VandenKerkhof E, Anastassiades T, et al. The natural progression of health-related quality of life: Results of a five-year prospective study of SF-36 scores in a normative population. Qual Life Res 2006;15:527-36.  Back to cited text no. 10
    
11.World health organization- division of mental health. WHOQOL field trial. World health organization, Geneva, 1995. Available from: http://www.who.int/mental_health/who_qol_field_trial_1995.pdf [Last accessed on 2011 May 24].  Back to cited text no. 11
    
12.World health organization- programme on mental health. WHOQOL-BREF- introduction, administration, scoring and generic version of the assessment. World health organization, Geneva, 1996. Available from: http://www.who.int/mental_health/media/en/76.pdf [Last accessed on 2011 May 24]  Back to cited text no. 12
    
13.Joshi VD, Mooppil N, Lim JFY. Validation of the kidney disease quality of life- short form: A cross-sectional study of a dialysis-targeted health measure in Singapore. BMC Nephrol 2010;11:36.  Back to cited text no. 13
    
14.Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 1995;9:207-19.  Back to cited text no. 14
    
15.EuroQoL Group. EuroQoL: A new facility for the measurement of heath-related quality of life. Health Policy 1990;16:199-208.  Back to cited text no. 15
    
16.Chhabra SK, Kaushik S. Validation of the Asthma quality of life questionnaire (AQLQ-UK English version) in Indian Asthmatic subjects. Indian J Chest Dis Allied Sci 2005;47:167-73.  Back to cited text no. 16
    
17.Leidy NK, Chan KS, Coughlin C. Is the Asthma Quality of Life Questionnaire a Useful Measure for Low-income Asthmatics? Am J Respir Crit Care Med 1998;158:1082-90.  Back to cited text no. 17
    
18.Polonsky WH. Understanding and assessing diabetes-specific quality of life. Diabetes Spectrum 2000;13:36-41.  Back to cited text no. 18
    
19.Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: A Quality-of-Life Instrument for Use in International Clinical Trials in Oncology. J Natl Cancer Inst 1993;85:365-76.  Back to cited text no. 19
    
20.Vileikyte L, Peyrot M, Bundy C, Rubin RR, Leventhal H, Mora P, et al. The development and validation of a neuropathy and foot ulcer-specific quality of life instrument. Diabetes Care 2003;26:2549-55.  Back to cited text no. 20
    
21.Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a Stroke-Specific Quality of Life Scale. Stroke 1999;30:1362-9.  Back to cited text no. 21
    
22.Rabins PV, Kasper JD, Kleinman L, Black BS, Patrick DL. Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer′s disease. J Ment Health Aging 1999;5:33-48.  Back to cited text no. 22
    
23.Bowling A. The psychometric properties of the Older people′s quality of life questionnaire, compared with the CASP-19 and the WHOQOL-OLD. Curr Genrontol Geriatr Res 2009;2009;298950.  Back to cited text no. 23
    
24.Varni JW, Seid M, Kurtin PS. PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001;39:800-12.  Back to cited text no. 24
    
25.Mystakidou K, Tsilika E, Kouloulias V, Parpa E, Katsouda E, Kouvaris J, et al. The "Palliative Care Quality of Life Instrument (PQLI)" in terminal cancer patients. Health Qual Life Outcomes 2004;2:8.  Back to cited text no. 25
    
26.Ney PG. Who can best judge quality of life? Can Med Assoc J 1981;124:365.  Back to cited text no. 26
    
27.Richards MA, Ramirez AJ. Quality of life: The main outcome measure of palliative care. Palliat Med 1997;11:89-92.  Back to cited text no. 27
    
28.Lunder U, Sauter S, Fürst CJ. Evidence-based palliative care: Beliefs and evidence for changing practice. Palliat Med 2004;18:265-6.  Back to cited text no. 28
    
29.Groenvold M. Methodological issues in the assessment of health-related quality of life in palliative care trials. Acta Anaesthesiol Scand 1999;43:948-53.  Back to cited text no. 29
    
30.Hermsen MA, ten Have HA. Moral problems in palliative care journals. Palliat Med 2001;15:425-31.  Back to cited text no. 30
    
31.Hermsen MA, ten Have HA. Euthanasia in palliative care journals. J Pain Symptom Manage 2002;23:517-25.  Back to cited text no. 31
    
32.Flannelly KJ, Weaver AJ, Smith WJ, Oppenheimer JE. A systematic review on chaplains and community-based clergy in three palliative care journals: 1990-1999. Am J Hosp Palliat Care 2003;20:263-8.  Back to cited text no. 32
    
33.Hermsen MA, ten Have HA. Pastoral care, spirituality, and religion in palliative care journals. Am J Hosp Palliat Care 2004;21:353-6.  Back to cited text no. 33
    
34.Flannelly KJ, Weaver AJ, Costa KG. A systematic review of religion and spirituality in three palliative care journals, 1990-1999. J Palliat Care 2004;20:50-6.  Back to cited text no. 34
    
35.Puchalski CM, Kilpatrick SD, McCullough ME, Larson DB. A systematic review of spiritual and religious variables in Palliative Medicine, American Journal of Hospice and Palliative Care, Hospice Journal, Journal of Palliative Care, and Journal of Pain and Symptom Management. Palliat Support Care 2003;1:7-13.  Back to cited text no. 35
    
36.Kumar SP. Reporting characteristics of cancer pain: A systematic review and quantitative analysis of research publications in palliative care journals. Indian J Palliat Care 2011;17:57-66.  Back to cited text no. 36
    
37.Kumar SP. Reporting of pediatric palliative care- a systematic review and quantitative analysis of research publications in palliative care journals. Indian J Palliat Care 2011;Accepted for publication.  Back to cited text no. 37
    
38.Baumrucker SJ, Stolick M, Carter GT, Lasky TM, Sheldon JE, Harrington D, et al. Death, dying, and statistics: Quality measures versus quality of life. Am J Hosp Palliat Care 2010;27:494-9.  Back to cited text no. 38
    
39.Rogers SK, Gomez CF, Carpenter P, Farley J, Holson D, Markowitz M, et al. Quality of life for children with life-limiting and life-threatening illnesses: Description and evaluation of a regional, collaborative model for pediatric palliative care. Am J Hosp Palliat Care 2011;28:161-70.  Back to cited text no. 39
    
40.Rose M. Response to Letter to the editor: New clinical end points in rehabilitation medicine: Tools for measuring quality of life. Am J Hosp Palliat Care 2010;27:358.  Back to cited text no. 40
    
41.Abresch RT, Carter GT, Han JJ, McDonald CM. New clinical end points in rehabilitation medicine: Tools for measuring quality of life. Am J Hosp Palliat Care 2009;26:483-92.  Back to cited text no. 41
    
42.Sherman DW, Ye XY, Beyer-McSherry C, Parkas V, Calabrese M, Gatto M. Symptom assessment of patients with advanced cancer and AIDS and their family caregivers: The results of a quality-of-life pilot study. Am J Hosp Palliat Care 2007;24:350-65.  Back to cited text no. 42
    
43.Brasel KJ. Quality-of-life assessment in palliative care. Am J Hosp Palliat Care 2007;24:231-5.  Back to cited text no. 43
    
44.Carter GT, Han JJ, Abresch RT, Jensen MP. The importance of assessing quality of life in patients with neuromuscular disorders. Am J Hosp Palliat Care 2006;23:493-7.  Back to cited text no. 44
    
45.Clark MM, Rummans TA, Sloan JA, Jensen A, Atherton PJ, Frost MH, et al. Quality of life of caregivers of patients with advanced-stage cancer. Am J Hosp Palliat Care 2006;23:185-91.  Back to cited text no. 45
    
46.Rosemann T, Hermann K, Miksch A, Engeser P, Szecsenyi J. The PAMINO-project: Evaluating a primary care-based educational program to improve the quality of life of palliative patients. BMC Palliat Care 2007;6:5.  Back to cited text no. 46
    
47.Jaarsma T, Johansson P, Agren S, Strömberg A. Quality of life and symptoms of depression in advanced heart failure patients and their partners. Curr Opin Support Palliat Care 2010;4:233-7.  Back to cited text no. 47
    
48.Kumar SP, Jim A. Physical therapy in palliative care: From symptom control to quality of life: a critical review. Indian J Palliat Care 2010;16:138-46.  Back to cited text no. 48
[PUBMED]  Medknow Journal  
49.Singh DP. Quality of life in cancer patients receiving palliative care. Indian J Palliat Care 2010;16:36-43.  Back to cited text no. 49
[PUBMED]  Medknow Journal  
50.Sinha A, Goyal H, Singh S, Rana SP. Quality of life of ostomates with the selected factors in a selected hospital of Delhi with a view to develop guidelines for the health professionals. Indian J Palliat Care 2009;15:111-4.  Back to cited text no. 50
[PUBMED]  Medknow Journal  
51.Dahlin CM, Kelley JM, Jackson VA, Temel JS. Early palliative care for lung cancer: Improving quality of life and increasing survival. Int J Palliat Nurs 2010;16:420-3.  Back to cited text no. 51
    
52.Jocham HR, Dassen T, Widdershoven G, Halfens RJ. Quality-of-life assessment in a palliative care setting in Germany: An outcome evaluation. Int J Palliat Nurs 2009;15:338-45.  Back to cited text no. 52
    
53.Moffat P. Quality of life in patients with cancer. Int J Palliat Nurs 2008;14:4.  Back to cited text no. 53
    
54.Crang C, Muncey T. Quality of life in palliative care: Being at ease in the here and now. Int J Palliat Nurs 2008;14:90-7.  Back to cited text no. 54
    
55.Desbiens JF, Fillion L. Coping strategies, emotional outcomes and spiritual quality of life in palliative care nurses. Int J Palliat Nurs 2007;13:291-300.  Back to cited text no. 55
    
56.Jones JM, Cohen SR, Zimmermann C, Rodin G. Quality of life and symptom burden in cancer patients admitted to an acute palliative care unit. J Palliat Care 2010;26:94-102.  Back to cited text no. 56
    
57.Shahidi J, Bernier N, Cohen SR. Quality of life in terminally ill cancer patients: Contributors and content validity of instruments. J Palliat Care 2010;26:88-93.  Back to cited text no. 57
    
58.Gourdji I, McVey L, Purden M. A quality end of life from a palliative care patient′s perspective. J Palliat Care 2009;25:40-50.  Back to cited text no. 58
    
59.Yan S, Kin-Fong C. Quality of life of patients with terminal cancer receiving palliative home care. J Palliat Care 2006;22:261-6.  Back to cited text no. 59
    
60.Kim KU, Yoon SJ, Lee JL, Ahn HS, Park HJ, Lee SI, et al. Validation of the Korean version of the McMaster Quality of Life Scale in terminal cancer patients. J Palliat Care 2006;22:40-5.  Back to cited text no. 60
    
61.Leung KK, Tsai JS, Cheng SY, Liu WJ, Chiu TY, Wu CH, et al. Can a good death and quality of life be achieved for patients with terminal cancer in a palliative care unit? J Palliat Med 2010;13:1433-8.  Back to cited text no. 61
    
62.Lemiale V, Kentish-Barnes N, Chaize M, Aboab J, Adrie C, Annane D, et al. Health-related quality of life in family members of intensive care unit patients. J Palliat Med 2010;13:1131-7.  Back to cited text no. 62
    
63.Myotoku M, Nakanishi A, Kanematsu M, Sakaguchi N, Hashimoto N, Koyama F, et al. Reduction of opioid side effects by prophylactic measures of palliative care team may result in improved quality of life. J Palliat Med 2010;13:401-6.  Back to cited text no. 63
    
64.Utne I, Miaskowski C, Bjordal K, Paul SM, Rustoen T. The relationships between mood disturbances and pain, hope, and quality of life in hospitalized cancer patients with pain on regularly scheduled opioid analgesic. J Palliat Med 2010;13:311-8.  Back to cited text no. 64
    
65.Petersen MA, Pedersen L, Groenvold M. Does nonparticipation in studies of advanced cancer lead to biased quality-of-life scores? J Palliat Med 2009;12:1023-8.  Back to cited text no. 65
    
66.Monsky WL, Yoneda KY, MacMillan J, Deutsch LS, Dong P, Hourigan H, et al. Peritoneal and pleural ports for management of refractory ascites and pleural effusions: Assessment of impact on patient quality of life and hospice/home nursing care. J Palliat Med 2009;12:811-7.  Back to cited text no. 66
    
67.Steinhauser KE, Alexander SC, Byock IR, George LK, Olsen MK, Tulsky JA. Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial. J Palliat Med 2008;11:1234-40.  Back to cited text no. 67
    
68.Miyashita M, Misawa T, Abe M, Nakayama Y, Abe K, Kawa M. Quality of life, day hospice needs, and satisfaction of community-dwelling patients with advanced cancer and their caregivers in Japan. J Palliat Med 2008;11:1203-7.  Back to cited text no. 68
    
69.Shahidi J, Khodabakhshi R, Gohari MR, Yahyazadeh H, Shahidi N. McGill Quality of Life Questionnaire: Reliability and validity of the Persian version in Iranian patients with advanced cancer. J Palliat Med 2008;11:621-6.  Back to cited text no. 69
    
70.Prince-Paul M. Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in patients with cancer enrolled in hospice. J Palliat Med 2008;11:20-5.  Back to cited text no. 70
    
71.Lyon ME, Williams PL, Woods ER, Hutton N, Butler AM, Sibinga E, et al. Do-not-resuscitate orders and/or hospice care, psychological health, and quality of life among children/adolescents with acquired immune deficiency syndrome. J Palliat Med 2008;11:459-69.  Back to cited text no. 71
    
72.Elliott TE, Reiner CM, Palcher JA. The prognostic value of measuring health-related quality of life in hospice patients. J Palliat Med 2007;10:696-704.  Back to cited text no. 72
    
73.Doyle M, Bradley NM, Li K, Sinclair E, Lam K, Chan G, et al. Quality of life in patients with brain metastases treated with a palliative course of whole-brain radiotherapy. J Palliat Med 2007;10:367-74.  Back to cited text no. 73
    
74.Sherman DW, Ye XY, McSherry C, Parkas V, Calabrese M, Gatto M. Quality of life of patients with advanced cancer and acquired immune deficiency syndrome and their family caregivers. J Palliat Med 2006;9:948-63.  Back to cited text no. 74
    
75.Hays RM, Valentine J, Haynes G, Geyer JR, Villareale N, McKinstry B, et al. The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life. J Palliat Med 2006;9:716-28.  Back to cited text no. 75
    
76.Tarakeshwar N, Vanderwerker LC, Paulk E, Pearce MJ, Kasl SV, Prigerson HG. Religious coping is associated with the quality of life of patients with advanced cancer. J Palliat Med 2006;9:646-57.  Back to cited text no. 76
    
77.Schonwetter RS, Roscoe LA, Nwosu M, Zilka B, Kim S. Quality of life and symptom control in hospice patients with cancer receiving chemotherapy. J Palliat Med 2006;9:638-45.  Back to cited text no. 77
    
78.Nygren I, Askmark H. Self-reported quality of life in amyotrophic lateral sclerosis. J Palliat Med 2006;9:304-8.  Back to cited text no. 78
    
79.Wilder H, Parker Oliver D, Demiris G, Washington K. Informal Hospice Caregiving: The Toll on Quality of Life. J Soc Work End Life Palliat Care 2008;4:312-32.  Back to cited text no. 79
    
80.Levin TT, Riskind J, Li Y. Looming cognitive style and quality of life in a cancer cohort. Palliat Support Care 2010;8:449-54.  Back to cited text no. 80
    
81.Kasven-Gonzalez N, Souverain R, Miale S. Improving quality of life through rehabilitation in palliative care: Case report. Palliat Support Care 2010;8:359-69.  Back to cited text no. 81
    
82.Olsson AG, Markhede I, Strang S, Persson LI. Differences in quality of life modalities give rise to needs of individual support in patients with ALS and their next of kin. Palliat Support Care 2010;8:75-82.  Back to cited text no. 82
    
83.Grande GE, Farquhar MC, Barclay SI, Todd CJ. Quality of life measures (EORTC QLQ-C30 and SF-36) as predictors of survival in palliative colorectal and lung cancer patients. Palliat Support Care 2009;7:289-97.  Back to cited text no. 83
    
84.Schulman-Green D, Ercolano E, Dowd M, Schwartz P, McCorkle R. Quality of life among women after surgery for ovarian cancer. Palliat Support Care 2008;6:239-47.  Back to cited text no. 84
    
85.Melin-Johansson C, Odling G, Axelsson B, Danielson E. The meaning of quality of life: narrations by patients with incurable cancer in palliative home care. Palliat Support Care 2008;6:231-8.  Back to cited text no. 85
    
86.Fatone AM, Moadel AB, Foley FW, Fleming M, Jandorf L. Urban voices: The quality-of-life experience among women of color with breast cancer. Palliat Support Care 2007;5:115-25.  Back to cited text no. 86
    
87.Lapid MI, Rummans TA, Brown PD, Frost MH, Johnson ME, Huschka MM, et al. Improving the quality of life of geriatric cancer patients with a structured multidisciplinary intervention: A randomized controlled trial. Palliat Support Care 2007;5:107-14.  Back to cited text no. 87
    
88.Grabsch B, Clarke DM, Love A, McKenzie DP, Snyder RD, Bloch S, et al. Psychological morbidity and quality of life in women with advanced breast cancer: A cross-sectional survey. Palliat Support Care 2006;4:47-56.  Back to cited text no. 88
    
89.Huang IC, Shenkman EA, Madden VL, Vadaparampil S, Quinn G, Knapp CA. Measuring quality of life in pediatric palliative care: Challenges and potential solutions. Palliat Med 2010;24:175-82.  Back to cited text no. 89
    
90.Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Evaluation of quality-of-life measures for use in palliative care: A systematic review. Palliat Med 2010;24:17-37.  Back to cited text no. 90
    
91.Selby D, Wright F, Stilos K, Daines P, Moravan V, Gill A, et al. Room for improvement? A quality-of-life assessment in patients with malignant bowel obstruction. Palliat Med 2010;24:38-45.  Back to cited text no. 91
    
92.Tsujikawa M, Yokoyama K, Urakawa K, Onishi K. Reliability and validity of Japanese version of the McGill Quality of Life Questionnaire assessed by application in palliative care wards. Palliat Med 2009;23:659-64.  Back to cited text no. 92
    
93.Svidén GA, Fürst CJ, von Koch L, Borell L. Palliative day care-a study of well-being and health-related quality of life. Palliat Med 2009;23:441-7.  Back to cited text no. 93
    
94.Ahlner-Elmqvist M, Bjordal K, Jordhøy MS, Kaasa S, Jannert M. Characteristics and implications of attrition in health-related quality of life studies in palliative care. Palliat Med 2009;23:432-40.  Back to cited text no. 94
    
95.Yong DS, Kwok AO, Wong DM, Suen MH, Chen WT, Tse DM. Symptom burden and quality of life in end-stage renal disease: A study of 179 patients on dialysis and palliative care. Palliat Med 2009;23:111-9.  Back to cited text no. 95
    
96.Hagelin CL, Wengström Y, Ahsberg E, Fürst CJ. Fatigue dimensions in patients with advanced cancer in relation to time of survival and quality of life. Palliat Med 2009;23:171-8.  Back to cited text no. 96
    
97.Mitchell GK, Del Mar CB, O′Rourke PK, Clavarino AM. Do case conferences between general practitioners and specialist palliative care services improve quality of life? A randomised controlled trial (ISRCTN 52269003). Palliat Med 2008;22:904-12.  Back to cited text no. 97
    
98.Rowlands J, Noble S. How does the environment impact on the quality of life of advanced cancer patients? A qualitative study with implications for ward design. Palliat Med 2008;22:768-74.  Back to cited text no. 98
    
99.Henry M, Huang LN, Ferland MK, Mitchell J, Cohen SR. Continued study of the psychometric properties of the McGill quality of life questionnaire. Palliat Med 2008;22:718-23.  Back to cited text no. 99
    
100.Persson C, Ostlund U, Wennman-Larsen A, Wengström Y, Gustavsson P. Health-related quality of life in significant others of patients dying from lung cancer. Palliat Med 2008;22:239-47.  Back to cited text no. 100
    
101.Hyun Kim S, Kyung Gu S, Ho Yun Y, Geol Lee C, Seon Choi Y, Sup Lee W, et al. Validation study of the Korean version of the McGill Quality of Life Questionnaire. Palliat Med 2007;21:441-7.  Back to cited text no. 101
    
102.Aa Petersen M, Pedersen L, Groenvold M. Does the agreement of patient and physician assessments of health related quality of life in palliative care depend on patient characteristics? Palliat Med 2007;21:289-94.  Back to cited text no. 102
    
103.Echteld MA, van Zuylen L, Bannink M, Witkamp E, Van der Rijt CC. Changes in and correlates of individual quality of life in advanced cancer patients admitted to an academic unit for palliative care. Palliat Med 2007;21:199-205.  Back to cited text no. 103
    
104.Cohen R, Leis AM, Kuhl D, Charbonneau C, Ritvo P, Ashbury FD. QOLLTI-F: measuring family carer quality of life. Palliat Med 2006;20:755-67.  Back to cited text no. 104
    
105.Saini T, Murtagh FE, Dupont PJ, McKinnon PM, Hatfield P, Saunders Y. Comparative pilot study of symptoms and quality of life in cancer patients and patients with end stage renal disease. Palliat Med 2006;20:631-6.  Back to cited text no. 105
    
106.Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, et al. EORTC QLQ-C15-PAL: The new standard in the assessment of health-related quality of life in advanced cancer? Palliat Med 2006;20:59-61.  Back to cited text no. 106
    
107.Echteld MA, Deliens L, Onwuteaka-Philipsen B, Klein M, van der Wal G. EORTC QLQ-C15-PAL: The new standard in the assessment of health-related quality of life in advanced cancer? Palliat Med 2006;20:1-2.  Back to cited text no. 107
    
108.World health organization. Definition of palliative care. Available from: http://www.who.int/cancer/palliative/definition/en/ [Last accessed on 2011 Sept 17].  Back to cited text no. 108
    
109.Higginson IJ, Carr AJ. Use of quality of life measures in the clinical setting. BMJ 2001;322:1297-300.  Back to cited text no. 109
    


    Figures

  [Figure 1], [Figure 2], [Figure 3], [Figure 4], [Figure 5], [Figure 6], [Figure 7], [Figure 8]
 
 
    Tables

  [Table 1], [Table 2], [Table 3]

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