| ORIGINAL ARTICLE
|Year : 2011 | Volume
| Issue : 3 | Page : 191--196
What does the informal caregiver of a terminally ill cancer patient need? A study from a cancer centre
Anjum S Khan Joad, TC Mayamol, Mohita Chaturvedi
Department of Palliative Care, Bhagwan Mahaveer Cancer Hospital and Research Centre, Jaipur, India
Aims: To assess the needs of informal caregivers of terminally ill cancer patients.
Materials and Methods: Fifty four informal caregivers of patients registered in our palliative care service were interviewed 3-6 months after the death of the patient with the help of a semistructured questionnaire covering the physical, medical, psychological, social, and information domains.
Results: Most of the caregivers were middle aged and had no prior experience of care giving. The caregivers were satisfied by the information and medical support provided to them by their treatment team. Most had an "emergency plan." Caregivers had unmet needs including homecare, psychological support, and financial help.
Conclusions: informal caregivers provide most of the nursing and psychological support to the patient. However, palliative care services need to recognize that the caregiver too may need psychological and technical support.
Anjum S Khan Joad
Department of Palliative Care, Bhagwan Mahaveer Cancer Hospital and Research Centre, Jaipur
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